Hospital Update 5 - We are in the ward!!

I thought it was timely to update the blog today given it's been a few days since we have. It's been quiet so we haven't had a lot of time to do so.

We are FINALLY in the renal ward, we were able to go last week but at the last minute there wasn't a bed available for Cha so we had to wait until yesterday evening. Scott and Cha moved into the ward around 6:30pm last night and I will be staying at her bedside mostly now so that Scott can work.

All of Charlotte's tests have come back inconclusive which is good, so the Rhinovirus and low Haemoglobin were what tipped the poor darling over the edge. She almost has all of the virus out of her body but still a little while until we can be sure. All of Cha's numbers are looking good (bloods and Obs) and we are really just waiting now to get her medications weaned and back on track as well as her therapy back to its regular regime.

I have kind of come to terms with the fact that we might be in hospital another couple of weeks and am feeling okay about it. For those people who have spent long stints in hospital perhaps you can understand that it's sometimes just better to give in rather than wanting to get out of there every day.

Over the coming days, we will be working on building up Cha's strength with physio and getting her onto a pretty strict renal diet so we might have a bit of resistance there but no doubt she will adapt pretty easily.

Thanks again to everyone for checking in, not a lot to update at this stage (which is good).

Comments

"Are you sitting down?"

Charlotte and I had just got back from our monthly clinic appointment at SCH Randwick and I'd just given her some meds and food when I received a call from an unknown number. It was Dr Spicer, our regular renal doctor, and she said, 'Scott, are you sitting down'? She told me the news that they have a suitable kidney donor for Charlotte. I am normally calm but I just started shaking. As most of you know, our journey here has been challenging but Charlotte has always taken each moment as it comes. We were told this was not going to be a normal transplant and could run into complications but after the 8 hour surgery Charlotte has been showing lots of signs that her new kidney is working well. **Warning** Some images could be confronting to view. 16/10/25 - The day before 17/10/25 - Post Transplant 18/10/25 - The next day

Hospital Update - Week 4

17.05.24 On Tuesday this week, Charlotte went under general anesthesia to have a scan done for all the different teams to discuss her kidney transplant. We won’t, however, know the information until the 11th of June so you can imagine we are both excited and anxious. Charlotte’s potassium has been higher than normal over the last week so medication was given and several ECG’s done to monitor any issues which all came back fine. The renal doctors are fine-tuning her medication and dialysis regime for us to hopefully go home soon. Charlotte still gets her observations (blood pressure, heart rate and temperature) checked every 4 hours so they can calibrate her BP suitable for going home. This hospital visit has made me realise that having a boring home routine is a good thing. Even if at the time you think your life is not exciting, this I feel is a good thing. Getting out of your comfort zone is important but being bored is underrated. I would give anything to do 'normal...

Hospital update 1

Hospital Update 1: Charlotte's hemoglobin has been slowly declining for the last few months. Her blood test last Friday showed the levels are very low. It was yesterday (Monday the 22nd) when we noticed Charlotte's behaviour really started to change and quite quickly. Kristal took Charlotte into Sydney Children's where she was rushed into emergency. Charlotte was moved a few hours later from Emergency to ICU where she currently is now. What seems to have occurred is the low red blood count has increased her blood pressure and potentially caused liquid to fill her right lung. Yesterday Charlotte had a blood transfusion and as I'm writing this she having her lungs drained of the fluid. At 3:45pm she will also have a bone marrow biopsy. She is sedated and the ICU have been amazing. We are also ok. We are looking after ourselves and each other. We expect Charlotte to be in ICU for about 7 to 10 days and the doctors have said she is in a stable condition.

THE CHA CHI

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