THE CHA CHI

17.05.24 On Tuesday this week, Charlotte went under general anesthesia to have a scan done for all the different teams to discuss her kidney transplant. We won’t, however, know the information until the 11th of June so you can imagine we are both excited and anxious.  Charlotte’s potassium has been higher than normal over the last week so medication was given and several ECG’s done to monitor any issues which all came back fine. The renal doctors are fine-tuning her medication and dialysis regime for us to hopefully go home soon. Charlotte still gets her observations (blood pressure, heart rate and temperature) checked every 4 hours so they can calibrate her BP suitable for going home.   This hospital visit has made me realise that having a boring home routine is a good thing. Even if at the time you think your life is not exciting, this I feel is a good thing. Getting out of your comfort zone is important but being bored is underrated. I would give anything to do 'normal...

Charlotte is doing really well, she has most of her strength back, sitting up a lot more, enjoying her food again and doing lots of drawing and colouring. She has completely weaned off her sedation and back to her usual sleep and wake cycles which is good.  Cha's bloods look stable and her Haemoglobin has held steady since her great blood transfusion. Over the coming week or so it will just be about getting her therapy back to a more regular regime so that we can progress to getting home.  It's so nice to see her smiling and laughing again, she definitely still doesn't like the doctors and nurses in her room but that is to be expected given all of her experiences.  Cha and I managed 8 hours of sleep last night which is unheard of in the hospital, the tiredness must be setting in! All in all, we are doing pretty well. My mantra is to have no expectations on a home date so that we have no disappointments and I think that will help us get through the next week or so. 

I thought it was timely to update the blog today given it's been a few days since we have. It's been quiet so we haven't had a lot of time to do so. We are FINALLY in the renal ward, we were able to go last week but at the last minute there wasn't a bed available for Cha so we had to wait until yesterday evening. Scott and Cha moved into the ward around 6:30pm last night and I will be staying at her bedside mostly now so that Scott can work. All of Charlotte's tests have come back inconclusive which is good, so the Rhinovirus and low Haemoglobin were what tipped the poor darling over the edge. She almost has all of the virus out of her body but still a little while until we can be sure. All of Cha's numbers are looking good (bloods and Obs) and we are really just waiting now to get her medications weaned and back on track as well as her therapy back to its regular regime.  I have kind of come to terms with the fact that we might be in hospital another couple of ...